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Ongoing

KIDSVOICE: Empowering Children and Young Patients through routine collection of patient reported outcomes to deliver patient-centred and value-based healthcare

Project Details

STATUS

Ongoing

START

July 2023

END

December 2025

Principal Investigators

Dr Joanna Fardell

Behavioural Science Unit, UNSW Sydney

A/Prof Dr Antoinette Anazodo

Sydney Children’s Hospital

Dr Marion Mateos

Kid’s Cancer Centre

Prof Geoffrey Delaney AM

Liverpool Hospital

Dr Bhavna Padhye

Children’s Hospital Westmead

Dr Richard Mitchell

Sydney Children’s Hospital

Dr Clarissa Schilstra

Kids Cancer Centre

Dr Carolyn Mazariego

UNSW Sydney

Dr Dinisha Govender

Children’s Hospital Westmead

Categories

Clinical Themes

Platforms

Project Summary

The project aims to improve consistency of the collection of meaningful Patient Reported Outcomes (PROs) and then use of evidence-based care by (1) utilising co-design methodology to develop a PRO model of care, and (2) establish acceptability and preliminary efficacy by conducting an implementation feasibility RCT pilot using paediatric oncology supportive care as a test case.

Cards